Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life

The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.

Inclusion Criteria:

• Patient diagnosed with retinoblastoma at any age
• At least five years from completion of all retinoblastoma-directed therapy
• Able to provide informed consent and/or assent, if indicated