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| ID | Type | Description | Link |
|---|---|---|---|
| COPING1424 |
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In this research, we will use established surveys to look at the relationship between various styles of coping with a disease, religious coping styles, treatment compliance, locus of control, broad measures of mental health and adjustment, and basic health data (e.g., PFTs, recent hospitalizations or antibiotics within the past year, lung microbiology, CFTR mutations, and co-morbid conditions such as diabetes, depression, and liver disease). While the research is correlational, it should suggest relationships (both positive and negative) between various coping styles and desired outcomes (compliance and well-being).
OVERVIEW: We anticipate that the data we collect will help us better understand some of the factors associated with improved coping, treatment compliance, and emotional adjustment, which, in turn, may suggest possible interventions to improve compliance, emotional adjustment, and general physical health. Specific hypotheses include the following:
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| 1 | Adolescents with CF. |
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| Measure | Description | Time Frame |
|---|---|---|
| Multiple measures of coping strategies in adolescents with cystic fibrosis. | Single visit |
| Measure | Description | Time Frame |
|---|---|---|
| Coping startegies will be correlated with measures of clinical illness. | Single visit |
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Inclusion Criteria:
Exclusion Criteria:
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Adolescents age 13-19 with CF at a single CF center.
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| Name | Affiliation | Role |
|---|---|---|
| Nathan C Kraynack, MD | Akron Children's Hospital | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Akron Children's Hospital | Akron | Ohio | 44308 | United States |
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| ID | Term |
|---|---|
| D003550 | Cystic Fibrosis |
| ID | Term |
|---|---|
| D010182 | Pancreatic Diseases |
| D004066 | Digestive System Diseases |
| D008171 | Lung Diseases |
| D012140 | Respiratory Tract Diseases |
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| D030342 |
| Genetic Diseases, Inborn |
| D009358 | Congenital, Hereditary, and Neonatal Diseases and Abnormalities |
| D007232 | Infant, Newborn, Diseases |