| ID | Type | Description | Link |
|---|---|---|---|
| COG-AADM01P1 | Other Identifier | Children's Oncology Group |
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| Name | Class |
|---|---|
| National Cancer Institute (NCI) | NIH |
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RATIONALE: Collecting informed consent from parents of children with cancer to register with the Childhood Cancer Research Network may help the study of cancer in the future.
PURPOSE: This study is collecting informed consent to register younger patients with cancer into the Childhood Cancer Research Network.
OBJECTIVES:
OUTLINE: Consent is obtained from parents (and pediatric patients, where applicable) to register the patient's and parent's names and addresses with the Childhood Cancer Research Network, provide a copy of the pathology report to the Network, and contact parents in the future for possible non-therapeutic research studies involving the parents and/or child.
Information provided will be held in strict confidence.
PROJECTED ACCRUAL: Not specified
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| Stratum 1: No Consent for personal identification | Experimental | Data to be collected for this stratum include histology, primary site, treating hospital, and institutional principal investigator. Data will be coded using the North American Association for Central Cancer Registries (N.A.A.C.C.R.) data standards for cancer registries. |
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| Stratum 2: Consent for personal identification - No Contact | Experimental | Data will be collected for this study include:child's name, parent's name, address, telephone number, child's date of birth, race, ethnicity, histology, primary site, treating hospital, and institutional principal investigator. Data will be coded using the North American Association for Central Cancer Registries (N.A.A.C.C.R.) data standards for cancer registries. No contact for future to ask me to consider taking part in Research Network approved studies |
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| Stratum 3: Consent for personal identification - Contact | Experimental | Data will be collected for this study include:child's name, parent's name, address, telephone number, child's date of birth, race, ethnicity, histology, primary site, treating hospital, and institutional principal investigator. Data will be coded using the North American Association for Central Cancer Registries (N.A.A.C.C.R.) data standards for cancer registries Someone from the Childhood Cancer Research Network may contact me in the future to ask me to consider taking part in Research Network approved studies |
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| Name | Type | Description | Arm Group Labels | Other Names |
|---|---|---|---|---|
| cancer prevention intervention | Procedure |
|
| Measure | Description | Time Frame |
|---|---|---|
| Informed consent collection to register with the Childhood Cancer Research Network | ||
| Informed consent collection for possible participation in future non-therapeutic research studies | ||
| Facilitation of systematic registration into the Childhood Cancer Research Network |
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DISEASE CHARACTERISTICS:
PATIENT CHARACTERISTICS:
PRIOR CONCURRENT THERAPY:
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| Name | Affiliation | Role |
|---|---|---|
| Julie A. Ross, PhD | Masonic Cancer Center, University of Minnesota | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Jonathan Jaques Children's Cancer Center at Miller Children's Hospital | Long Beach | California | 90801 | United States | ||
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| educational intervention | Procedure |
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| Carole and Ray Neag Comprehensive Cancer Center at the University of Connecticut Health Center |
| Farmington |
| Connecticut |
| 06360-2875 |
| United States |
| Lee Cancer Care of Lee Memorial Health System | Fort Myers | Florida | 33901 | United States |
| University of Florida Shands Cancer Center | Gainesville | Florida | 32610-0232 | United States |
| Cancer Research Center of Hawaii | Honolulu | Hawaii | 95813 | United States |
| Advocate Lutheran General Cancer Care Center | Park Ridge | Illinois | 60068-1174 | United States |
| Breslin Cancer Center at Ingham Regional Medical Center | Lansing | Michigan | 48910 | United States |
| Children's Hospitals and Clinics of Minneapolis | Minneapolis | Minnesota | 55404 | United States |
| Norris Cotton Cancer Center at Dartmouth-Hitchcock Medical Center | Lebanon | New Hampshire | 03756-0002 | United States |
| Hackensack University Medical Center Cancer Center | Hackensack | New Jersey | 07601 | United States |
| Albany Medical Center Hospital | Albany | New York | 12208-3419 | United States |
| NYU Cancer Institute at New York University Medical Center | New York | New York | 10016 | United States |
| Mission Hospitals - Memorial Campus | Asheville | North Carolina | 28801 | United States |
| Children's Medical Center - Dayton | Dayton | Ohio | 45404-1815 | United States |
| Tod Children's Hospital - Forum Health | Youngstown | Ohio | 44501 | United States |
| St. Christopher's Hospital for Children | Philadelphia | Pennsylvania | 19134-1095 | United States |
| East Tennessee Children's Hospital | Knoxville | Tennessee | 37916 | United States |
| Driscoll Children's Hospital | Corpus Christi | Texas | 78466 | United States |
| Fletcher Allen Health Care - University Health Center Campus | Burlington | Vermont | 05405 | United States |
| University of Alberta Hospital | Edmonton | Alberta | T6G 1Z2 | Canada |
| Montreal Children's Hospital at McGill University Health Center | Montreal | Quebec | H3H 1P3 | Canada |
| ID | Term |
|---|---|
| D018479 | Early Intervention, Educational |
| ID | Term |
|---|---|
| D002662 | Child Health Services |
| D003153 | Community Health Services |
| D006296 | Health Services |
| D005159 | Health Care Facilities Workforce and Services |
| D011314 | Preventive Health Services |
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