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Unable to recruit necessary sample size
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| Name | Class |
|---|---|
| Shriners Hospitals for Children | OTHER |
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The purpose of this study is to develop a standardized, practical self-administered questionnaire to monitor young adult burn patients and to evaluate the effectiveness of burn management treatments with regard to improved function, physical appearance and other relevant outcomes.
Identifying young adult burned patients at risk for poor outcomes remains an underpublished field of study. The first step to identifying these patients is to review their responses to this burn specific young adult measure, that attempts to quantify aspects of quality of life. We are validating this questionnaire by now collecting information from non burned community based subjects and by having burned patients complete the questionnaire at 4 timepoints. Once we have recruited sufficient subjects we will finalize our testing of this questionnaire and publish the validity and reliability of the instrument. Our questionnaires will help us answer the question of how burn people differ from non burned person's reported quality of life. This will complete our array of burn specific outcomes questionnaires from infancy through young adulthood.
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Inclusion Criteria:
Exclusion Criteria:
Non-burned skin conditions
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Patients admitted to the MGH burn unit for a burn injury between the ages of 19-30 years.
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| Name | Affiliation | Role |
|---|---|---|
| Ronald G. Tompkins, MD, ScD | MGH, Shriners Burn Hospital - Boston | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Shriners Hospital for Children | Sacramento | California | 95817 | United States | ||
| Kennedy Krieger Institute |
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| ID | Term |
|---|---|
| D002056 | Burns |
| D014947 | Wounds and Injuries |
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| Baltimore |
| Maryland |
| 21205 |
| United States |
| Mass General Hospital | Boston | Massachusetts | 02114 | United States |
| University of Nebraska Medical Center | Omaha | Nebraska | 68198-3335 | United States |
| Jaycee Burn Center,UNC Healthcare | Chapel Hill | North Carolina | 27599-7050 | United States |
| Shriners Hospitals for Children-Galveston | Galveston | Texas | 77550 | United States |