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| Name | Class |
|---|---|
| American Association of Neurological Surgeons | OTHER |
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The overall aim of the registry is to develop a longitudinal, observational database that is focused on adult patients with Normal Pressure Hydrocephalus (NPH) that can be used as a source of clinical information for individual surgeons, as well as a national data repository for scientific inquiry and publications.
This is a prospective, multi-center, observational database to collect data on the characteristics, management practices, and patient outcomes of NPH patients. It will be offered to a geographically representative group of U.S. physicians who will enroll NPH patients. The physician makes his/her own clinical decisions; thus, the data captured provides current practice patterns related to diagnosis, management, and results. The registry may also assist physicians in patient follow-up and certain practice management tasks. The data collected will serve to inform the medical community on optimal care for this patient population
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| Measure | Description | Time Frame |
|---|---|---|
| Database to describe the population of patients with NPH presenting for treatment (assessed at baseline/no safety assessment) | End of trial |
| Measure | Description | Time Frame |
|---|---|---|
| To determine frequency of the various treatments for NPH and the outcomes of those treatment (assessed during surgery and at follow-up/no safety assessment) | End of trial |
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Inclusion Criteria:
Exclusion Criteria:
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NPH patient who is a candidate for a shunt. Can not be under that age of 18, have a known contraindication for a shunt, or have an expected life span of less than 24 months.
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| Name | Affiliation | Role |
|---|---|---|
| Anthony Marmarou, Ph.D. | Virginia Commonwealth University | Study Chair |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| Phoenix | Arizona | United States | ||||
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| Label | URL |
|---|---|
| Related Info | View source |
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| Los Angeles |
| California |
| United States |
| Boulder | Colorado | United States |
| Jacksonville | Florida | United States |
| Macon | Georgia | United States |
| Boise | Idaho | United States |
| Chicago | Illinois | United States |
| Iowa City | Iowa | United States |
| Lexington | Kentucky | United States |
| Detroit | Michigan | United States |
| Camden | New Jersey | United States |
| Charlotte | North Carolina | United States |
| Winston-Salem | North Carolina | United States |
| Youngstown | Ohio | United States |
| Midwest City | Oklahoma | United States |
| Medford | Oregon | United States |
| Portland | Oregon | United States |
| Abington | Pennsylvania | United States |
| Hershey | Pennsylvania | 17033 | United States |
| Johnson | Pennsylvania | United States |
| Pittsburgh | Pennsylvania | United States |
| Kingsport | Tennessee | United States |
| Dallas | Texas | United States |
| Wichita Falls | Texas | United States |
| Payson | Utah | United States |
| Salt Lake City | Utah | United States |
| Richmond | Virginia | 23298-0449 | United States |
| La Crosse | Wisconsin | United States |
| ID | Term |
|---|---|
| D006850 | Hydrocephalus, Normal Pressure |
| D006849 | Hydrocephalus |
| ID | Term |
|---|---|
| D001927 | Brain Diseases |
| D002493 | Central Nervous System Diseases |
| D009422 | Nervous System Diseases |
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