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| ID | Type | Description | Link |
|---|---|---|---|
| 93-N-0202 |
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This protocol is a screening and natural history protocol, which allows for evaluation of
patients and families where neurological conditions are present for enrollment into other
studies and will also be used to screen healthy volunteers to create a pool of potential future HV matches for HMCS protocols. Through diagnostic evaluations, data will be collected for research use in this study.
This protocol is a screening and natural history protocol, which allows for evaluation of
patients and families where neurological conditions are present for enrollment into other
studies and will also be used to screen healthy volunteers to create a pool of potential future HV matches for HMCS protocols. Through diagnostic evaluations, data will be collected for research use in this study.
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| Label | Type | Description | Intervention Names |
|---|---|---|---|
| family members | Family Members who are 2 years old or older of people with a neurological disorder | ||
| healthy volunteers | healthy volunteers age 18 and older | ||
| patients | subjects with neurological disorders who are 2 years old or older |
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| Measure | Description | Time Frame |
|---|---|---|
| to screen patients with neurological conditions and family members of patients with neurological conditions for enrollment in additional research protocols | The goal is to screen patients with neurological conditions and family members of patients with neurological conditions for enrollment in additional research protocols. No investigational treatments will be administered on this protocol and the NIH physicians will be playing a consultative role to the patient s primary physician. | ongoing |
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EXCLUSION CRITERIA:
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The following population groups may participate: - Subjects with neurological disorders who are 2 years old or older, - Family members who are 2 years old or older of people with a neurological disorder, - Healthy volunteers who are 18 years old or older.
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| Name | Affiliation | Role |
|---|---|---|
| Debra J Ehrlich, M.D. | National Institute of Neurological Disorders and Stroke (NINDS) | Principal Investigator |
| Facility | Status | City | State | ZIP | Country | Contacts |
|---|---|---|---|---|---|---|
| National Institutes of Health Clinical Center | Bethesda | Maryland | 20892 | United States |
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| Label | URL |
|---|---|
| NIH Clinical Center Detailed Web Page | View source |
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This protocol was written before creating sharing plans was required. We do share data with other protocols done by our group to avoid having to repeat procedures, but there is no official "research" done in this protocol, so it is unlikely that we will need to share any IPD elsewhere. If there is, we will consider it on a case-by-case basis.
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| ID | Term |
|---|---|
| D009422 | Nervous System Diseases |
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